PRIMARY CILIARY DYSKINESIA (PCD)

My son was born with a rare chronic condition called Primary Ciliary Dyskinesia (PCD). With the creative input of Sarah Clarke of Fluid by Design we have created the PCD Angel Pendants to raise awareness and funds for The PCD Family Support Group.

I would like extend my thanks to all of you who have purchased a PCD Angel so far (and to those who will!). As a result, I was delighted to hand a cheque for £500.00 over to Fiona Copeland, Chair of the PCD Family Support Group. On each angel sold I am donating £10.00 to The PCD Family Support group but on the beautiful 9 carat gold PCD Angel, it increases to £100.00. Please follow me on Twitter @PCD_Angel or see my Facebook Page: PCD Angel Jewellery, to keep track on my fundraising progress.

HOW YOU CAN HELP

Your unwanted gold and silver can be recycled into producing more PCD Angels and I would like to thank those of you, who have helped me in the past by doing this. Your donations help to reduce costs and increase the money I am able to donate to The PCD Family Support Group. For more information on how to recycle your unwanted gold or silver, please contact me via info@pcd-angel.co.uk. You can also make a donation direct to The PCD Family Support Group at www.pcdsupport.org.uk and visiting the how to donate section.

Purchase your own

PCD Angel Pendant

PRIMARY CILIARY DYSKINESIA (PCD) What is it?

Each year in the UK, over 100 children are diagnosed with a debilitating, lifelong illness called primary ciliary dyskinesia (PCD). It is estimated that at least 3000 people in the UK have PCD. Symptoms often begin soon after birth, with babies needing oxygen because of difficulties breathing. The children suffer recurrent ear and chest infections, meaning they miss a lot of school. They often need hearing aids and some find that their lungs are permanently damaged, with some eventually needing surgery to have part of their lung removed or a lung transplant, typically during adulthood.

Once their illness is correctly diagnosed, children are given regular, twice-daily physiotherapy, which helps clear their lungs. Many also take antibiotics on a regular basis to tackle infections. The right treatment can relieve children’s suffering, help stop their illness from getting worse and protect their lungs from permanent damage. However, PCD sometimes goes undiagnosed, or is mistaken for other illnesses, such as cystic fibrosis or asthma, which cause similar symptoms. Even if PCD is suspected, diagnosis is complicated and unpleasant, with children having to undergo several tests at specialist centres, including biopsies of the lining of their nose.

PCD Gold Heart Angel

SITUS INVERSUS

Some individuals with Primary Ciliary Dyskinesia have abnormally placed organs within their chest and abdomen. These abnormalities arise early in embryonic development when the differences between the left and right sides of the body are established. About 50 percent of people with Primary Ciliary Dyskinesia have a mirror-image reversal of their internal organs (Situs Inversus Totalis). For example, in these individuals the heart is on the right side of the body, instead of on the left.

PCD Gold Angel

DELIVERY

Free Postage & Packing to UK Mainland. International and non UK mainland customers please contact me for a shipping quote before ordering.

I will normally dispatch within 2 working days of receiving cleared payment.